I’ve promised you all an update on my nine month old son, Deuce, so here we go… Please bare with me because this mama is an emotional mess.
About a month ago, I noticed a teeny tiny ridge on the back of Deuce’s head. I also noticed that his head was still narrow in areas where it should be full and full in areas it should be narrow. I brought it up to our physical therapist and she said that she had noticed it as well and wanted us to see the neurosurgeon again. Yesterday, we finally had our meeting with Deuce’s neurosurgeon. I was really hoping for a definitive answer, but didn’t get one. His surgeon said that neurologically, he is intact and thriving (praise the LORD) and that he is doing really well! As far as the appearance of his head and his head shape, the surgeon said that he agrees it’s not normal and wants us to see the plastic surgeon ASAP. He said there are two courses of action; the first being 3-6 more months of helmet therapy, the second being another surgery. As soon as we left the appointment, I called Deuce’s plastic surgeon and they said they could get us in the next day.
My husband and I were really, really upset and worried for several reasons. The first reason is obvious – we don’t want our son to go through another surgery. The second reason – Deuce hates his helmet. HATES it. And continuing with 3-6 more months, means he would need a third helmet (since he’s done with his second) so that’s another $1,000. All of these emotions were hard to understand, but ultimately we just want our sweet boy to be okay.
So, this morning, with anxious hearts, we arrived at Deuce’s appointment. The plastic surgeon told us that she doesn’t think a third band would benefit him because his skull is completely fused together again. Then she told us that she doesn’t believe he needs a second surgery at this point because while his head shape has some issues, she thinks they will correct themselves as he continues to grow. We will continue to see the plastic surgeon every 6 months until he’s three years old.
To say we are relieved is an understatement. The hardest part is over and behind us and we are so proud of our sweet boy and all he’s overcome!
The last few days have been a whirlwind of emotion… This journey is anything but easy, but man, it is worth it. I honestly thought I would be updating you all with bad news so I am overjoyed at the result of these two anxiety-filled days.
Thank you all so much for your prayers and for following along with my babe on his cranio journey.