Deuce Family Garcia Family

A little update…

Thank you to everyone who has prayed for our sweet little man (who has sagittal craniosynostosis). If you aren’t aware of what we’ve been through the past few weeks, you can catch up here. I just wanted to quickly update you all… He is doing so much better. His head is looking great and his pain is being managed a lot better.

Before surgery…

Handing your child off to a stranger while fully awake is 100% unnatural. Nothing can prepare you for that moment.

Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay

A few hours after surgery…

Surgery was successful. He did require a blood transfusion, which was expected. His surgery finished up at around 2:15pm, but we weren’t able to see him until after 4:45pm. Walking into his room in ICU to see him was extremely emotional. He was sedated, wheezing, could barely breathe and in so much pain. Seeing your child in pain and not being able to help them whatsoever is easily the hardest thing on the planet.

Sagittal Craniosynostosis, Surgery and Hospital Stay

DAY TWO…

My sweet baby boy finally opened his eyes! He was majorly swollen, but was starting to get little bits of his personality back. He started smiling again, too! We also broke out of the ICU (around 36 hours after surgery) and got to spend the second night in a regular patient room.

Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay

Sagittal Craniosynostosis, Surgery and Hospital Stay

DAY THREE…

Deuce started feeling so much better!! Thank God! We spent the day being cleared by plastic surgery and neurosurgery… and then we got to go home!!

Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay Sagittal Craniosynostosis, Surgery and Hospital Stay

HOME…

The first night went surprisingly well! We know it’s going to be a long road to full recovery (3 months in a helmet, years of specialist appointments, etc)  but, gosh, this kid is my hero! I am so proud of him and so lucky to be his mama.

FINALLY HOME! after surgery for sagittal craniosynostosis

Once again, thank you for the prayers, support, texts, DM’s, donations, meals, and everything else!!! You guys are awesome and we are so grateful.

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craniosynostosis journey - after surgery update

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3 Comments

  • Reply
    sara
    July 30, 2016 at 7:23 am

    Got teary-eyed just going through this post! Been following you on IG and I have a son around this age as well, so I think the emotions are hitting me harder than ever. I’m so so glad he’s doing okay, and look at that smile! What a fighter, truly. It’s like we’re the weak ones and they’re so strong!! Good luck with the recovery and keep us updated. So glad you’re home. God bless.

  • Reply
    What’s wrong your son? | | The Garcia Diaries
    August 24, 2016 at 6:26 pm

    […] brain abnormality. Craniosynostosis requires surgery. My son had surgery at 3 months old, with a three day hospital stay. The absolute worst three days of my life. And now, he is doing helmet therapy (he was to wear his […]

  • Reply
    2016 Recap + New Year's Resolutions | The Garcia Diaries
    December 30, 2016 at 9:22 pm

    […] with craniosynostosis and a month later, he had skull surgery. You can read about it here and here. We are so happy to say that our sweet boy is thriving and healthy. He is just the sweetest thing […]

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